Looking back over the past year we can say it was a year of challenges, change, growth, sadness, and frustration. You may think there is nothing positive to talk about, but I must tell you there is! The Cystic Fibrosis Foundation has had life changing discoveries and has committed to promising research in the CF Foundation’s “Path for the Cure”. Check it out here! (http://www.cff.org/Research/About-Our-Research/Path-to-a-Cure-Many-Routes-One-Mission/) In the past we have spoken about medications in the pipeline. There were times when we were excited to have 6 therapies in the works. I am thrilled to inform you that there are 42 therapies in the pipeline and clinical trials! This is in addition to the 16 that have been through the pipeline and are now available to people with CF! The CF Foundation responded to the COVID pandemic by providing over 10,000 home spirometers to patients so lung function could be monitored at home and this information could be shared with their care team during virtual visits.
On a personal level, Dustin has been on Trikafta for over a year and has noted an improvement in his health. Katelyn had an uncomplicated pregnancy and has been blessed with a beautiful baby boy, Jameson. Nicole and Roberto welcomed Lucius to their family. If you told us 20 years ago that our children would be healthy, married and parents we would have had a hard time believing it! None of this would have been possible without your support and the commitment and dedication of the CF Foundation!
So much work is being done with laser like focus. We do not want any research or development to lack funding because all these therapies have potential to save lives and make lives healthier and easier for people with CF. The CF Foundation has allocated 500 million dollars to research in all areas in the Path for a Cure through 2025. With this in mind, we need your help to continue.
Last year we put on our masks and took a walk in our neighborhoods. Family and friends across the country joined us by walking around their home and sent me pictures. This year, on May 16th, we are planning to do the same and are asking you to join us by walking around your neighborhood to raise awareness for CF. Please send me a selfie of you on your walk! (845-594-5502) It will help us feel united with each other! We are also asking for your support with a donation of $1 to $100 (or more) to our family team “Curcio Family”. No donation is too small because when added to others it grows and makes a difference. You can view pictures from last year on our family page at http://fightcf.cff.org/goto/teamcurcio. You can make an online donation there or if you prefer to send a check please make it out to CFF and mail to our home address. Please share this good news and site with your family and friends and invite them to be part of this event.
We are abundantly blessed with our growing family and the health of our children and grandchildren. We are always humbled by your generosity and we are forever grateful.
Wishing you all the best, Georgette, Frank, and Family
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.