Dear Family and Friends, The year 2020 has been a year of change and adjustment on how we live our lives. This is also the case for the Cystic Fibrosis Foundation. The annual Great Strides Walk has been canceled due to the Corona Virus pandemic, however the celebration of accomplishment and fundraising for the cure is still going on. This is the 65th anniversary of the Cystic Fibrosis Foundation and the work that has been done in those years has been incredible and has changed the lives of people with CF. The median life expectancy is now 47 years old and more than 50% of people with CF are adults! This past year the FDA approved Trikafta which corrects the defect of the cell wall and allows it to function more “normal”. This medication has helped over 90% of the people living with CF including our children, however, the work for the CF cure is not completed. There are so many therapies in the pipeline that need funding including gene therapy which would be the real cure for all. As a family we are dedicating our “walk” in memory of our Mom and Nana who went to heaven on Easter Sunday. On June 7th we all plan to walk anywhere in our neighborhood practicing social distancing, of course. Can you also take a short walk and remember Mom (Nana) and her tireless support of the CF Foundation and the work they are doing? On our CF Foundation Curcio Family page, http://fightcf.cff.org/goto/teamcurcio, you will see pictures of Mom at past walks. You can also make an online donation there. If you prefer to send a check, please make it out to CFF and mail it to our home address. We are asking in honor of the 65th year of the CF Foundation and our 65 Roses roots that you consider a donation of $65 to our virtual walk this year. During these difficult times we understand that this may not be possible, but even a donation of $6.50 (or anything in between!) would be appreciated. We are abundantly blessed with our growing family and the health of our children and grandchildren. We are always humbled by your generosity and we are forever grateful. Wishing you all the best,
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.