There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for all of them and my own 3 children with cystic fibrosis. I hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.
This past year the CF Foundation got FDA approval for a dual drug therapy that is effective for 60% of people with CF. When the announcement came with the genetic mutation list that it would work for, we scanned the list. We found E831X, our mutation! It was like winning the lottery 3 times! This medication corrects the cell function and makes them work like normal cells. This is a daily treatment for our children. But there are so many that have not received this news. We still need to work to attain this for all. We are not done, so please help us, help everyone with CF by supporting our walk. None of this would be possible without the advances in care that the Cystic Fibrosis Foundation has provided. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me?
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Please support me by making a donation to my Great Strides fundraising campaign today!! Your 100-percent tax deductible gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.