Due to COVID-19 our fundraising efforts have been extremely impacted and our walk has now gone virtual. Please consider becoming a virtual walker for our walk on June 5th!
Join our team and help add tomorrows!
We lace up and walk for our energetic, kind and loving 10-year-old daughter Mia. Mia is actively involved in student council, math club, drama, chorus, and band. This year Mia Has been working very hard practicing her flute for this year for the all-county festival auditions and Solo festival. For those who know how CF affects the lungs, know how hard this can be. No matter what is going on this brave little girl always has a smile on her face and wants to help others in need. We are beyond proud of this amazing little girl, whom we get to call our daughter, sister, friend, granddaughter, niece.....
This year has been AMAZING. Mia showed great progress on the medication she was taking, Orkambi so she is now taking Symdeko. This drug is a triple combination therapy to help improve lung function for those with CF. This Summer, we will evaluate her progress and hopefully start another medication called Trikafta. This medication was recently FDA approved for those 12 and older. They believe it is a highly effective treatment for the underlying cause of the disease. This sounds great, but it is NOT A CURE. Therefore, we need your help.
This year, we are participating in our local Great Strides walk on Sunday, June 7th at Bowdoin Park in Poughkeepsie, NY and we need your help to meet our teams fundraising goal of $1,500. Your generous gift will help accelerate innovative research and drug development, as well as advance care and advocacy. Plus, your gift is 100 percent tax deductible. Let's get closer to CF stand for CURE FOUND as we celebrate the 65th Anniversary of the Cystic Fibrosis Foundation!
Donating is easy and secure online Any amount that you can contribute is greatly appreciated. Your support matters!
The time is now. Together, we can conquer this disease.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.