Due to COVID-19 our fundraising efforts have been extremely impacted and our walk has now gone virtual. Please consider becoming a virtual walker for our walk on June 5th!
Join our team and help add tomorrows!
We lace up and walk for our energetic, kind and loving 10-year-old daughter Mia. Mia is actively involved in student council, math club, drama, chorus, and band. This year Mia Has been working very hard practicing her flute for the OCMEA All-County festival auditions. For those who know about how CF affects those living with the disease, know how hard this can be. No matter what is going on this brave little girl always has a smile on her face and wants to help others in need. We are beyond proud of this amazing little girl, whom we get to call our daughter, sister, friend, granddaughter, niece.....
This year has been AMAZING. Mia showed great progress on the medication she was taking, Orkambi so she is now taking Symdeko. This drug is a triple combination therapy to help improve lung function for those with CF. This Summer, we will evaluate her progress and hopefully start another medication called Trikafta. This medication was recently FDA approved for those 12 and older. They believe it is a highly effective treatment for the underlying cause of the disease. This sounds great, but it is NOT A CURE. Therefore, we need your help.
This year, we are participating in our local Great Strides walk on Sunday, June 7th at Bowdoin Park in Poughkeepsie, NY and we need your help to meet our teams fundraising goal of $1,500. Your generous gift will help accelerate innovative research and drug development, as well as advance care and advocacy. Plus, your gift is 100 percent tax deductible. Let's get closer to CF stand for CURE FOUND as we celebrate the 65th Anniversary of the Cystic Fibrosis Foundation!
Donating is easy and secure online Any amount that you can contribute is greatly appreciated. Your support matters!
The time is now. Together, we can conquer this disease.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.