Aurora has Cystic Fibrosis, a life shortening disease... it is our battle and greatest intention to keep her strong and healthy and her lungs disease free. We walk every year to raise money to find a cure, to help Aurora and all those suffering with Cystic Fibrosis. Aurora does daily chest PT to loosen the mucus always present in her lungs, so she can cough it out. She also takes multiple drugs, inhaled medications and special supplements every day in an effort to keep her healthy. Please copy and paste this link for a short slideshow about Aurora and her CF.
What is Cystic Fibrosis? CF is an inherited, life-threatening disease with no cure YET. People with CF have two copies of a defective gene that causes the body to produce abnormally thick, sticky mucus, which clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty with absorbing nutrients. In 1955 children born with CF were not expected to live long enough to attend elementary school. Today the average life expectancy for people with CF is 41. This is extraordinary progress BUT IT IS NOT ENOUGH! And it is NOT the reality we expect for our little girl, help us change these statistics!
This is our eighth year of fundraising for Cystic Fibrosis. We are asking you to do whatever you feel motivated to do to help. Don’t forget to get your company involved and check with your HR department because many employers have fund matching programs.
NO DONATION IS TOO SMALL. TOGETHER WE CAN MAKE A DIFFERENCE!
Your generous gift will be used efficiently and effectively, with at least 90 cents of every dollar of Foundation revenue going to support vital CF research, medical and education programs.
You may donate directly online below Or send a check to: The Tisman’s, PO Box 1052. New Paltz, NY 12561
Please make checks payable to the Cystic Fibrosis Foundation
Any questions don’t hesitate to email: firstname.lastname@example.org
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.