Aurora has Cystic Fibrosis, a life shortening disease... it is our battle and greatest intention to keep her strong and healthy and her lungs disease free. We walk every year to raise money to find a cure, to help Aurora and all those suffering with Cystic Fibrosis. Aurora does daily chest PT to loosen the mucus always present in her lungs, so she can cough it out. She also takes multiple drugs, inhaled medications and special supplements every day in an effort to keep her healthy. Please copy and paste this link for a short slideshow about Aurora and her CF.
What is Cystic Fibrosis? CF is an inherited, life-threatening disease with no cure YET. People with CF have two copies of a defective gene that causes the body to produce abnormally thick, sticky mucus, which clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty with absorbing nutrients. In 1955 children born with CF were not expected to live long enough to attend elementary school. Today the average life expectancy for people with CF is 41. This is extraordinary progress BUT IT IS NOT ENOUGH! And it is NOT the reality we expect for our little girl, help us change these statistics!
This is our eighth year of fundraising for Cystic Fibrosis. We are asking you to do whatever you feel motivated to do to help. Don’t forget to get your company involved and check with your HR department because many employers have fund matching programs.
NO DONATION IS TOO SMALL. TOGETHER WE CAN MAKE A DIFFERENCE!
Your generous gift will be used efficiently and effectively, with at least 90 cents of every dollar of Foundation revenue going to support vital CF research, medical and education programs.
You may donate directly online below Or send a check to: The Tisman’s, PO Box 1052. New Paltz, NY 12561
Please make checks payable to the Cystic Fibrosis Foundation
Any questions don’t hesitate to email: firstname.lastname@example.org
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.