Donna Furino

In memory of Joan Hoffman

In lieu of flowers please donate in support of my best friend’s granddaughter Lulu, and the Cystic Fibrosis Foundation. Please read Lulu’s story below written by her mother Valerie.

“This is our second year joining the Cystic Fibrosis Foundations Great Strides walk!  We walk and fundraise for our salty and sweet little Lulu.  Lulu is two years old now, and is one of the small percent of CF’ers with two rare mutations.  This means that she is NOT eligible to take any of the current miracle drugs that have recently become available to many others with CF.  The Cystic Fibrosis Foundation has helped us every step of the way! Between providing us with as much support and information as possible during her diagnosis and difficult 2 1/2 month NICU stay, to helping fight our insurance for coverage of necessary supplements via their Compass program, and even provided her Gastrointestinal doctor with specialty CF training via their former DIGEST training program. This Foundation has been sooo important to us, and is tirelessly working to find and fund treatments that can ease and extend Lulu’s life! We will be walking on May 19th on the beautiful grounds of the Lyndhurst Mansion to support Lulu’s future, and ALL those living and coping with this disease.  We are so grateful for all of your generosity and support!”

There is currently no cure for cystic fibrosis. By participating in Great Strides, we are helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them (including our Lulu).  Your donations will help us keep going.