Margaret Sullivan

For over 20 years Maureen and Jack have both been battling Cystic Fibrosis. When Maureen was diagnosised her life expecetancy was 18 years, she is now 32 years old, married and is a LMSW earning her MSW last year and expecting her first child, a boy this Spring . Jack has struggled for years with his disease. He missed years of going to school on a full-time basis because of multiple hospitalizations and need of IV antibiotics. His prognosis was that he would need a double transplant by the time he turned 20 years old. He is now 22 years old, 6ft 6 inches tall, completed his last semester as an undergraduate and graduating in May. He is now in Albany working as an analyst for the NYS House Ways and Means Committee.  All these achievements could have never been possible with out the creation of Trikafta. Through your past generosity, medications like Trikafta have slowed down the progression of Cystic Fibrorsis. Eventhough it has slowed down the progression of the disease it is not a cure. We need a cure! I want to be selfish and see my children live life to its fullest! I want them to have the careers they worked so hard to achieve, families of their own, the life they were told they may never see. Please help us today find the key that will unlock the cure! Thank you!