Hello! Thank you for visiting my fundraising page. I have decided to join the fight against Cystic Fibrosis to support Luna, the daughter of my close friends Kayla and Kiel. What exactly is Cystic Fibrosis? It is a life-threatening condition that affects salt channels in the body, mainly in the lungs and pancreas. People with Cystic Fibrosis often have mucus build up in their lungs and are prone to lung infections. Additionally, about 85% of Cystic Fibrosis patients are pancreatic insufficient, meaning they have a hard time absorbing nutrition from food they eat. Thankfully, Luna’s case of CF will be mild. While she will need to keep up with regular visits to her pulmonologist, be extra cautious about germs, and always be on medications, it should not affect the quality or length of her life. However, this is ONLY possible because of all the amazing research and work done by the Cystic Fibrosis Foundation. Luna's doctors have admitted that had Luna received this diagnosis ten years ago, her prognosis would be drastically different. Thankfully today, Luna will have two medications,Kalydeco and Trikafta, available to treat her condition and give her a relatively normal quality of life. However, these medications have only been approved in 2017 and 2020, respectively.
The CF foundation supported the development of these medications scientifically, clinically, and financially; and while neither is a cure, with these medications Luna should be able to remain relatively symptom free until adulthood. Her Cystic Fibrosis team is confident by that time there will be new advancements in medication, and one day in her lifetime a cure. However, that will only be possible if the Cystic Fibrosis Foundation continues to receive the funding necessary to continue their research and advancements. I will be walking for Luna on May 19, 2024. If you are able to do so, I would highly appreciate your support in the form of a donation towards my fundraising goals as this is a matter very important to me. Thank you for your time and support.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.