Hi! I'm excited to be participating in the Great Strides walk for CF once again this year. My daughter, Luna, was diagnosed with CF shortly before her 2nd birthday after we received word that there had been a mistake on her newborn screening test. My husband and I were completely shocked and immediately threw ourselves headfirst into learning as much about this disease as we possibly could. While Luna is doing very well and currently taking a gene modulator to help with the progression of her CF, there is still no cure for this and we will continue raising funds until there is a cure for everyone.
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There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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