Hello Everyone!
It's that time of year again when I reach out to you, our family, friends and colleagues, in support of our efforts to raise funds and find a cure for Cystic Fibrosis. As you may know, our niece, Caroline, was diagnosed with CF when she was 5 months old. Cystic Fibrosis is a genetic disease that causes the body to produce abnormally thick, sticky mucus that clogs the lungs leading to chronic lung infections and fatal lung damage. This mucus also clogs the digestive organs, prohibiting proper digestion and causing malnourishment. There is no cure. To learn more about CF and The Cystic Fibrosis Foundation, please see below*
A fleeting twenty-five years have passed since we have been making our annual appeal on behalf of the Cystic Fibrosis Foundation. That makes Miss Caroline twenty-six years old!! We are so proud of her as she continues to expertly manage all the many things that she must do every day to keep herself healthy. Last year, we mentioned an important drug study Caroline was participating in that is specific to her rare CF genetic mutations. Unfortunately, the study was halted and is being re-worked so there is no news on that front. There are so many studies in process, and we remain hopeful that a life changing breakthrough is in the near future for Caroline and all others whose lives are affected by CF!
There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to live and breathe. Our team walks for all of them, but especially for our sweet Caroline. We hope you will support us in our efforts to raise funds for crucial research.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. Caroline is one of 10% of people with CF rare mutations who cannot take advantage of the recent life-changing drugs that you may have heard about. By participating in the Great Strides walk, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Please support us by donating to our Great Strides fundraising campaign today.
Please support Team Caroline!
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
On behalf of our family and the many others affected by Cystic Fibrosis, we thank you for your generous support.
Anthony and Jill
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.