Our beautiful granddaughter, Brianna, is now eight years old and is in third grade. After the COVID 19 lockdown last year, Brianna is happy to be back in school and seeing her friends every day. Brianna loves dancing. She has taken up ballet and enjoys choreographing her own dance routines. Brianna loves playing teacher and takes pride that she taught her brother Nolan to read during the COVID lockdown. She can’t wait to start teaching her new baby sister, Julianne Margaret, who was born in March.
Despite the COVID 19 challenges, the Cystic Fibrosis Foundation continued to pursue research into new medications addressing the root cause of Cystic Fibrosis. In June 2021, Brianna was able to start on a newly developed Cystic Fibrosis medication, Trikafta, that has enabled her to achieve a healthy weight gain while at the same time reducing the amount of her digestive enzyme medication. This latest Cystic Fibrosis medication has also enabled Brianna to reduce her lung therapies from twice a day to once a day. And just yesterday we learned that Brianna’s salt levels from her recent sweat test sample fell into the normal range. Her levels are now that of a non-CF child!
The Cystic Fibrosis medical breakthroughs in the last 10-years have been remarkable, improving the quality of life for Brianna and the entire Cystic Fibrosis community and providing all of us hope that a cure for Cystic Fibrosis will soon be found. It is a result of the support that all of you have given in the past to this great organization that has made this all possible.
The annual CF Great Strides Walk will be held on Sunday, May 22nd at Lyndhurst in Tarrytown. Please consider coming out and walking with Brianna and all of us or making a donation. Any amount can go a long way to help find a cure for Cystic Fibrosis.
Thank you so very much. Hugh and Anne Kathy.