Dear Family and Friends
I started walking for Cystic Fibrosis in 1997.
Every year it gets harder to fund raise.
Every year it gets harder to ask the same people for help and generosity.
Every year I think i will sit this one out.
Every year now I look in Brianna's eyes...
and think about all the advances that have been made just in the last 5 years since her birth.. and her future is now SO bright..
and it is ONLY because of all of the fund raising that we do that her future is even possible.
Brianna started Orkambi this year. It is the first drug for her mutation that treats the underlying cause of CF. Not just the symptoms. 10 years ago this type of medication was a pipe dream. Now my baby swallows it twice a day.
And there is a better drug out there for people 12 years and older.
And an even BETTER drug in phase 3 clinical trials.
So no matter how hard it is.. every year we make our video.
And every year we beg.
And every year I am more humbled and blown away by the generosity we are met with.
And maybe this year you can JOIN us... and walk with us. Brianna is older now and the support would mean so much to her.
Once again we thank you for your love and prayers. We thank you for your support and for coming out year after year to walk with us. We thank you for your donations which give us hope and faith that in the near future CF will stand for CURE FOUND!
From the bottom of our hearts- thank you.
Erica and Brian Rice