There are approximately 30,000 Americans living with cystic fibrosis( CF ). We found out our daughter Dayna Jenae was among that number in 2006 when she was diagnosed shortly after her birth. Since that time we have been tireless supporters of the Cystic Fibrosis Foundation, and fund-raisers to find a cure for CF.
Dayna lives, copes and thrives despite having CF. She participated in the clinical trial that brought the CF medication Trikafta to the market. Trikafta has been a godsend to so many fighting CF including Dayna, but it is not a cure and there are still many with CF that the medication does not help. We continue our efforts for them as well.
Dayna refuses to let her diagnosis define her. While she is currently taking 15 different daily medications including enzymes, inhaled medications, antibiotics, and vitamins, undergoing "Vest"chest therapy treatments before and after school, to keep her healthy, she still finds time to be a regular 15 year old.
Despite her medical challenges, Dayna is looking forward to celebrating her Sweet 16th Birthday the end of March and is still playing volleball both in high school as well as AAU, all while balancing a job and the coursework of 10th Grade!
There is still no cure for CF and children and adults are still losing their battle with this devastating disease. Real progress has been made in the search for a cure. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!
We are all still recovering from the many challenges the Covid-19 pandemic brought our way 2020. While we remain minful of the risks that still exist with covid-19, we are so excited that we are finally able to gather together in person for this years Great Strides Walk. This is our opportunity to reaffirm our commitment to doing everything we can to find the cure for CF!
Please support us!
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Dana & Jennifer Blackmon