
2023 will mark the 45th anniversary of my sister Lisa Rae's passing and August 7th marks the day in 1978 when she took her last breath and lost her battle. She was just 15 years old and life expectancy was 18 years old. Today, because of the incredible progress that the Cystic Fibrosis Foundation has made, people with CF are reaching new milestones, they are living longer - and the predicted median life expectancy is now 53 years old! But the lives of people with CF are still cut far too short! Children are still being admitted to hospitals, enduring hours of treatments each and every day, and swallowing dozens of pills a day.
There still is NO cure for this devastating disease. The Foundation has lead the way for transformative therapies and treatments for many people with CF, but not everyone has an effective treatment for their mutation.
I am hoping you will join and support me by making a donation to my 2022 Great Strides fundraising campaign today and support my efforts in my Lisa's memory and for all those still battling CF. We are Driven by a Dream for a life free of cystic fibrosis. You can be part of making history, as I truly believe this disease will have a cure in our lifetime! Thank you! Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.