Dana & Jennifer Blackmon

There are approximately 30,000 Americans living with cystic fibrosis( CF ). We found out our daughter Dayna Jenae was among that number in 2006 when she was diagnosed shortly after her birth.  Since that time we have been tireless supporters of the Cystic Fibrosis Foundation, and fund-raisers to find a cure for CF.

Dayna lives, copes and thrives despite having CF.  She participated in the clinical trial that brought the CF medication Trikafta to the market.  Trikafta has been a godsend to so many fighting CF including Dayna, but it is not a cure and there are still many with CF that the medication does not help.    We continue our efforts for them as well.

Dayna refuses to let her diagnosis define her.  While she is currently taking 15 different daily medications including enzymes, inhaled medications, antibiotics, and vitamins, undergoing "Vest"chest therapy treatments before and after school, to keep her healthy, she still finds time to do all the things expected of a typical 18 year old.  

Despite her medical challenges, Dayna is keeping a busy schedule while looking forward to completing her Senior year in highschool and continuing her education at University at Albany.  She is competed as a team captain of the  Varsity Volleyball team, played AAU volleyball, and had a starring role on stage in her high schools production of  Jekyll and Hyde the Musical! All  while balancing her school work and a part-time job!

There is still no cure for CF and children and adults are still losing their battle with this devastating disease. Real progress has been made in the search for a cure. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!

Please support us!

Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.

Dana & Jennifer Blackmon