Laura McNamara

There are approximately 30,000 Americans living with cystic fibrosis( CF ). We found out our daughter Dayna Jenae was among that number in 2006 when she was diagnosed shortly after her birth.  Since that time we have been tireless supporters of the Cystic Fibrosis Foundation, and fund-raisers to find a cure for CF.

Dayna lives, copes and thrives despite having CF.  She participated in the clinical trial that brought the CF medication Trikafta to the market.  Trikafta has been a godsend to so many fighting CF including Dayna, but it is not a cure and there are still many with CF that the medication does not help.    We continue our efforts for them as well.

Dayna refuses to let her diagnosis define her.  While she is currently taking 15 different daily medications including enzymes, inhaled medications, antibiotics, and vitamins, undergoing "Vest"chest therapy treatments before and after school, to keep her healthy, she still finds time to do all the things expected of a typical 17 year old.  

Despite her medical challenges, Dayna is keeping a busy schedule while looking forward to completing her Junior year in highschool.  She is continuing to compete in Varsity Volleyball as well as AAU volleyball, works a job after school and is currently doing an internship at a local bakery, all while balancing her school work!

There is still no cure for CF and children and adults are still losing their battle with this devastating disease. Real progress has been made in the search for a cure. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!