Our Great Strides Story
It has been nearly 7 months, and still grappling with our new reality. We had hoped for more time but we are grateful Morgan was able to celebrate his 31st birthday on October 12, You were there to share his last birthday. He held on until October 16 when he took his last breath.
When we received the devastating news late September that we were losing the battle, Morgan started a “to do list” for me. To celebrate his life, he wanted a bonfire with Indiana Jones playing on the big screen in the backyard and you supported his wish!
He wanted me to spend more time with his sister and try new things, like iced lattes. He always mentioned growing a Hass avocado tree, and I found a grafted tree in South Florida about a month ago. And of course, playing ball with Blitz is a must. We attended the GAAM Holiday Nerd Market, the Hoggetowne Medieval Fare, visited the Arboretum and we’ll keep honoring his wishes to participate in events that meant a lot to him.
After his transplant in 2018, he started participating in a range of outdoor activities like hiking, cycling, and kayaking. The kayak had been in the backyard, gathering mold, but Jodi's boys agreed to give it a new home. Now, "Captain Morgan" is back in the water!
Part of my to do list is to continue supporting the organizations that made a difference in his life. Thanks to your generosity, we reached our goal with Dreams Come True to sponsor a child with CF.
When Morgan was born, doctors told us he'd only live to be 14, and I wish every day that he was still here but the Cystic Fibrosis Foundation played a big role in giving us more time with him, helped make it possible for us to create so many memories together and helped Morgan meet amazing friends like you.
I'm thankful to Laura for reminding me about the Great Strides Event. As always, I'm depending on your support because I hope for a day when no parent has to lose their child to CF.
Join our team Walking with Morgan on May 18 at the Jacksonville Zoo and Gardens.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.