I turned 20 almost three months ago. Turning 20 is something most people take for granted. Not when you have CF.
Five years ago, I was able to enter a drug trial for the medication that was eventually approved in FDA record time called Trikafta. The ways in which my life was not only saved, but changed are incomprehensible when I sit down to try to list them. I have gone from the sick little girl that was hospitalized for weeks at a time over every cold to a young woman that’s survived a worldwide pandemic. Due to infection control issues, a girl that could not attend public school to a young woman in her second year at the University of Florida living in the dorm. The FIRST patient to successfully live in a dorm situation from my CF center.
And the most mind-blowing news to share? In one month, I am headed to Botswana for a program with UF’s wildlife ecology department. AFRICA, ya’ll!!
None of these life transforming changes would be possible without the CF Foundation, their commitment to funding medical research or YOU. I am grateful beyond words for everyone that supported my mom’s fundraising efforts through the years that made all this possible, not only for me, but for thousands of other CF patients like me.
So why am I asking for more?
Trikafta is many wonderful things, but it’s not a cure and not all CF patients can take it.
This year I’m walking in Great Strides for those patients. Please help me make the difference in their lives that past donations have made in mine.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.