Thank you for visiting our team page. This is our the 20th year participating in the Great Strides campaign aimed at finding the cure for cystic fibrosis.
Change is something we have learned to live with. In 2017, Danny received a port and began daily IV infusions, we had to re-arrange all schedules in order to incorporate his new medical regiment. In 2018, we began the vetting process for a lung transplant, visited different hospitals for extended stays and testing. In 2019, the big move to North Carolina where Danny was accepted for listing at UNC. In August of 2019, Danny was admitted into the hospital with pneumonia and on September 25th, he passed away. As we gathered ourselves from all this change, 2020 came to us with daily changes and uncertainty. Throughout this whirlwind life offered us, one constant we have had is the yearly Great Strides campaign to raise money and awareness for cystic fibrosis. Although last year and this year’s events are different, the mission remains the same. We plan to continue the fight we started together to find an END to this horrific disease. We will continue to do this the same way Danny lived his life, FULL THROTLE!!!
You can donate directly on this page. You can create your team under Team Running with Danny and have others join you in this effort.
We are asking everyone to Walk or Run any length you can, anywhere you can and post a picture of you and your friends and family during and tag us on Instagram @running_w_danny and or Facebook @runnningwithdanny. As well as @cffsouthflorida on both social media platforms. Use the below hashtags as well
#DQ19 #DQsLungs #DQStrong
Please share this with friends, family and collogues and help us continue to raise funds so that others with cf do not need to go through what Danny did.
You can visit our website www.runningwithdanny.org to read more about Danny and his life as well as follow us on social media on the Running with Danny pages on Facebook, Instagram and Twitter.
Our family thanks you for the continued support and generosity you have shown us throughout the years. Not only are we continuing the fight to raise life saving funds for medical research but will be celebrating Danny’s fight and keeping his legacy alive.
Thank you and God Bless!!!
Mike, Mari, Joanna, Michael and Danny
Please email us with any questions @ email@example.com
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.