Olivia is 2.5 years old and we are so proud of the little girl she is turning into. Her favorite activity is dancing, she enjoys playing with her dolls, building with blocks, coloring, unicorns and cats and being outside. She loves to play with her big brother Owen more than anything else! She is the best little helper and is full of sass and personality!
Olivia also takes multiple medications every day just to survive. Before she can eat anything, she has to take her enzymes to digest her food and retain any nutrients. She takes around 12 pills a day. She also has to do 2 hours of chest physio therapy everyday. Olivia does all of this everyday without any protest, which is remarkable to us being only 2 years old! But...This is just the tip of the iceberg - We are fortunate and blessed that Olivia is healthy right now, and so treatments for her are minimal. Yes, all this is minimal compared to what she will eventually do everyday and what many living with CF already do. Many spend hours a day doing treatments and take handfuls of pills, while others need to spend weeks in the hospital on antibiotics. This is why we fundraise. This is why we are apart of Great Strides!
Right now, there is no cure for Cystic Fibrosis. Treatments, medications and medical advancements have helped move the life expectancy to 47 years – but that is not enough! When you donate to the Cystic Fibrosis Foundation, you are helping to fund research that adds more tomorrow to Olivia’s life and everyone else with Cystic Fibrosis. You are also helping to fund a cure. And we need a cure!
Olivia was born in September 2017, and it was one of the greatest days of our lives. Our family of four was now complete and we couldn’t be happier! However, when Olivia was just 9 days old, we got a phone call that changed everything for our family. Olivia’s newborn screening came back and she tested positive for Cystic Fibrosis. While we are devastated by this diagnosis, we are committed to not letting this disease define or overcome Olivia. In these 2 and a half years, we have learned so much and are forever grateful for the community and army we have built around our family.
The smallest donation can make the huge difference.
We are hopeful for the future. We are grateful for all of you who are apart of Olivia’s Team. We cant do this without you!
How can you help Olivia?
Walk with us! Come join us on April 19th and walk with Olivia! Registering for our team and walking is FREE! However, your donations are very much appreciated!
Donate! Any donation that you can make to our team is SO appreciated. No donation is too small or big! $1, $5 $20 $100 every penny counts and brings us that much closer to life extending treatments and medicaitons.
Share! Sharing Olivia’s story is so important to us, as well as to the Cystic Fibrosis community. Even though 1 in 31 people are a carrier of CF, many people do not know much about the disease, and most have never even heard of it! By sharing Olivia’s story, you are spreading awareness about CF and helping to create change and make a difference to the CF community!
Become a virtual Walker! If you can’t join us in our walk, you can still join our team by becoming a virtual walker! Click on “join my team” and pick “virtual walker”. Once you do, you will also be given a link so you can share online to help us raise donations and awareness!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.