Thank you for visiting our team page. This is our the 21st year participating in the Great Strides campaign aimed at finding the cure for cystic fibrosis.
Change is something we have learned to live with. In 2017, Danny received a port and began daily IV infusions, we had to re-arrange all schedules in order to incorporate his new medical regiment. In 2018, we began the vetting process for a lung transplant, visited different hospitals for extended stays and testing. In 2019, the big move to North Carolina where Danny was accepted for listing at UNC. In August of 2019, Danny was admitted into the hospital with pneumonia and on September 25th 2019, he passed away. As we gathered ourselves from all this change, 2020 came to us with daily changes and uncertainty. Throughout this whirlwind life offered us, one constant we have had is the yearly Great Strides campaign to raise money and awareness for cystic fibrosis. Although last two years events were different, the mission remains the same. We plan to continue the fight we started together to find an END to this horrific disease. We will continue to do this the same way Danny lived his life, FULL THROTLE!!!
This year, all walks have been combined into one and will be held at Zoo Miami on April 9th. You can donate directly on this page. You can create your team under Team Running with Danny and have others join you in this effort.
Please share this with friends, family and collogues and help us continue to raise funds so that others with cf do not need to go through what Danny did.
You can visit our website www.runningwithdanny.org to read more about Danny and his life as well as follow us on social media on the Running with Danny pages on Facebook, Instagram and Twitter.
Our family thanks you for the continued support and generosity you have shown us throughout the years. Not only are we continuing the fight to raise life saving funds for medical research but will be celebrating Danny’s fight and keeping his legacy alive.
Thank you and God Bless!!!
Mike, Mari, Joanna, Michael and Danny
Please email us with any questions @ firstname.lastname@example.org
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.