From that moment on I have read a lot about it trying to learn as much as I can about it. Joined the Grampions, grandparents united to create awareness and work hard on fundraising events that will raise the necessary funds for scientifics to work on being able to find a cure. It is, a long road but little by little new medicines are being created but much more has to be done.
My goal this, year Is to raise $1500, no donation is too small. May God bless you!