Julia Newell

Olivia is 6 years old and lives with Cystic Fibrosis.

We are inspired by Olivia every day as she fights to keep healthy by completing her treatments, taking her medications, and smiling through each step. At 6 years old, she already works on being independent with her medications and treatments and knows what she needs to take and when. Each day, Olivia takes a little over 20 pills, nebulizer treatments, chest physical therapy with her vest machine and several other medications - and this is just her normal routine. If she's got a cold, a bad cough, or feeling under the weather, several of these medications and treatments can be doubled and sometimes other interventions are also added. Olivia hardly complains...and that's mostly because she has a great spirit and attitude, but also due to the fact that this has been her routine since she was was a baby. We hope that as she grows, more research, breakthroughs and eventually a cure, will lighten the load of her daily routine.

Olivia is also lucky enough to be taking Trikafta, one of the cellular modulators drugs for Cystic Fibrosis. Although Trikafta is a breakthrough treatment for those with cystic fibrosis, it is NOT a cure. We still have more work to do! Luckily, Olivia does not fight alone, as her team of family and friends who are apart of Living For Livi are always there ​beside her, supporting and cheering her on!

Your donations go directly to the cystic fibrosis foundation. In the past, your donations helped bring about the cellular modulators which are changing the lives of people with cystic fibrosis! We hope that you will continue to support us this year to help make better futures for those living with Cystic Fibrosis! We will not stop until we find a cure!

A little more about why Great Strides is so important for the CF community!

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. 

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history!