Thank you for visiting our page. This is our the 20th year participating in the Great Strides campaign aimed at finding the cure for cystic fibrosis.
Change is something we have learned to live with. In 2017, Danny received a port and began daily IV infusions, we had to re-arrange all schedules in order to incorporate his new medical regiment. In 2018, we began the vetting process for a lung transplant, visited different hospitals for extended stays and testing. In 2019, the big move to North Carolina where Danny was accepted for listing at UNC. In August of 2019, Danny was admitted into the hospital with pneumonia and on September 25th, he passed away. As we gathered ourselves from all this change, 2020 came to us with daily changes and uncertainty. Throughout this whirlwind life offered us, one constant we have had is the yearly Great Strides campaign to raise money and awareness for cystic fibrosis. Although last year and this year’s events are different, the mission remains the same. We plan to continue the fight we started together to find an END to this horrific disease. We will continue to do this the same way Danny lived his life, FULL THROTLE!!!
We are living in an unprecedented time, but together we will persevere. Those living with CF need to continue their fight through this pandemic. CF patients are managing additional challenges to their daily lives. Many are experiencing anxiety because of all the uncertainty around COVID-19, particularly because of the higher risk. Fear of returning to in-person work and school that could jeopardize their health, or the health of their loved ones. Patient safety: transitioning to telehealth services so patients can still have regular visits with their care teams without putting their health at risk. Patient isolation during routine hospital stays due to COVID-19 precautions and so on!!
This year’s VIRTUAL walk is scheduled for May 16th. You can donate directly on this page. You can create your team under Team Running with Danny and have others join you in this effort.
We are asking everyone to Walk or Run any length you can, anywhere you can and post a picture of you and your friends and family during and tag us on Instagram @running_w_danny and or Facebook @runnningwithdanny. As well as @cffsouthflorida on both social media platforms. Use the below hashtags as well
#DQ19 #DQsLungs #DQStrong
Please share this with friends, family and collogues and help us continue to raise funds so that others with cf do not need to go through what Danny did.
You can visit our website www.runningwithdanny.org to read more about Danny and his life as well as follow us on social media on the Running with Danny pages on Facebook, Instagram and Twitter.
Our family thanks you for the continued support and generosity you have shown us throughout the years. Not only are we continuing the fight to raise lifesaving funds for medical research but will be celebrating Danny’s fight and keeping his legacy alive.
Thank you and God Bless!!!
Mike, Mari, Joanna, Michael and Danny
Please email us with any questions @ firstname.lastname@example.org