Thank you everyone for helping to make Great Strides 2023 season a success. The funding raised will go a long way to bringing about a new era of remarkable therapies for treating Cystic Fibrosis and we couldn't have done it without your support! There's always another challenge on the horizon.
Here is a link to an article I wrote that was recently published in the Times Union to urge the New York State Legislature to deploy much needed assistance funds that have been appropriated but remain unavailable to those living with CF in NYS. It's crucial this program be permanently restored.
Dear Fellow Supporters,
It's time to get ready for Great Strides 2023 in support of Cystic Fibrosis research and treatments! We are still seeking the cure yet we are moving in the right direction and along the way achieving life changing milestones. One of these more notable milestones is the impact of 'Trikafta,' a medication which not only saved my life but significantly improved my quality of life and the lives of many others afflicted by this devastating disease.
A few years ago I was succumbing to severe, advanced lung decline until Trikafta put a halt to that rapid descent. Trikafta, a 'modulator' that improves cell function, was newly released for CF patients having the defective genes similar to mine. But much of the damage done to my lungs was irreversible and so my struggle to manage life with CF still continues. However, others living with CF were not as fortunate as myself. For some, CF has taken the ultimate toll and for others they cannot benefit from the current version of Trikafta. The takeaway is that while we have made it so far we cannot stop here. More advanced modulators and genetic based therapies are on the horizon. In memory of those who are no longer with us, those who still need advanced modulators that work specifically for them, and for everyone with CF who is still yearning for the cure, let's bring this home together!
Please consider donating by clicking "DONATE TO MICHAEL"
Love you all,
Michael, Gretchen and Tom Fox
To learn more about this devastating disease and the impact of the CF foundation, please visit www.cff.org