In these unusual times, our thoughts are with you and all those we count as friends. We sincerely hope you are well, and we send our sincere gratitude for your faithful support! We are pleased to report that 2019 was a most exciting year in CF science. The FDA approved Trikafta™, a highly effective medication that will improve the health of approximately 95% of people with CF. Thank you for helping to fund this remarkable drug!
CF researchers have proven they can effectively transform donated funds into life-saving science and benefit all humanity. Currently, for example, we are developing new antibiotics and anti-microbials to combat resistant bacteria. We are also making progress toward a permanent cure, potentially impacting all genetic diseases.
The corona virus has made life seem uncertain. Ironically, for people with CF, this lifestyle is nothing new. The fear of a germ that could cost precious lung function or even your life is all too familiar for people who battle cystic fibrosis. The concept of distancing, masks and infection control are life-long realities for people with cystic fibrosis.
One day, the pandemic will end. Will you consider, even in these difficult days, pledging to help us to end cystic fibrosis as well? Your gift will mean even more to us than ever before as we long for all people to breathe freely. You can support Kellan’s Crusaders and the mission of the Cystic Fibrosis Foundation by using the link below. We hope to see you at the New Canaan Great Strides Walk in 2021, standby for details.
What is Cystic Fibrosis?
Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually sticky mucus that:
- clogs the lungs and leads to life-threatening lung infections; and
- obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950’s, few children with CF lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30’s, 40’s and beyond.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.