Our daughter Addison Mae was born in April 26, 2017. 2 days after she was transferred to Yale New Haven Hospital with a vowel obstruction. She had surgery at 2 days old and had an Ileostomy bag for 3 months. It was reversed at 3 months old and ever since she has been thriving. She had a rough start but she is doing so good. She is on a medication that is helping her gain weight and she will be eligible for the new Triple Drug Therapy as soon as it is down to her age range. Our daughter is a fighter. She takes over 50 pills every single day. 4 airway clearance sessions with her vest every day. Nebulizer treatments. She has blood work done every 3 months as well as eye exams. She is a trooper and Makes us so proud at how gracious she takes every day of her life. Please, Join our team and help us get one step closer to a cure for cystic fibrosis.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.