We hope you'll join us for our second Great Strides event! We're walking as Nuts for Natalie on May 3 in West Haven. Thanks to your generous support, last year, our team raised over $5,000! Thank you!!
Since last year's walk, there's a been a lot of positive news! In October, the FDA approved a drug for the mutatations that Natalie carries. This is the 'triple combo' drug we've been waiting for. It's currently approved for ages 12 and up and will hopefully be available for younger patients after trials are completed. This medication is a game changer for Natalie - and it's thanks to you! Your contributions fund the important research and development of new medications and therapies to help everyone fighting CF. And we're very grateful.
For now, we try to keep Natalie as healthy as possible through a very regimented treatment schedule:
• 44,000 units of enzymes with every meal and snack • 2-3 airway clearance treatments daily with her Vest and albuterol • 1 dose of nebulized Pulmozyme to thin her sticky mucus • 3 doses of acid reducers daily • 3 doses of antibiotics to keep her food moving through her digestive system • 1 daily probiotic to keep her tummy happy • Special vitamins designed for CF kids • Lots of extra salt to optimize her organ function
We look forward to walking together on May 3 to make CF stand for Cure Found!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.