Like most people with Cystic Fibrosis (CF) I have my good days and my bad days. I always strive to have wayyyy more good days then bad, by sticking to my vest treatments and medication regiment. However sometimes that just doesn’t cut it, just after the new year I got hit with a horrible virus that made my whole body feel as though I got hit by a bus. Despite recently feeling better, with more energy, I am still working constently on bringing my lung functions up, since they still haven’t come back from the drop after the new year. My Pulmonary Function tests (PFT) went all the way down to 50% of predicted (the worst they have ever been), I’m usually around the mid to high 70’s. These numbers might not seem significant or meaningful to some of you who don’t fully understand or know CF first hand, but just think about not being able to take that deep breath without coughing while exercising or bursting into laughter only to have a coughing fit. Gasping for air is never comfortable and currently I am living between different antibiotics and tons of treatments.
This kind of coughing and life is not my norm. My norm is excersing at least 3 times a week and not coughing my head off during it. My norm is being able to have a life, with work, friends and trips, and not having CF completely control my life. So I am asking you to donate to the Maddie Mockingbirds so that the research can continue to be made for new strides with medications and treatments to make life a little easier while living with CF. Life is meant to be enjoyed, and my self and all other CFer’s should be right their with you jumping up and down at a concert, not just hearing about it through social media! So please come out to walk with the Maddie Mockingbirds on May 17th in New Canaan and donate to help make life more enjoyable with those living with Cystic Fibrosis!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.