Our family began our journey with Cystic Fibrosis on July 5th, 2017 with the birth of our 3rd daughter, Lucy Grace. When we learned Lucy would be born with CF we began researching, fundraising and advocating for our little girl. Lucy had been relatively healthy since her birth but the last 6 months have been much more challenging. It takes a lot of work to ensure she stays that as healthy as possible. Lucy does approximately 2 hours of treatments a day, up to 4 hours a day when sick. She has recently fought with MRSA and PSEUDOMONAS and had sinus surgery to clean out her mucus filled sinuses. Despite all of this, she continues to be the a positive and helpful kid who loves her sisters and playing her tablet while doing therapy. Cystic Fibrosis can be an unpredictable disease. Its symptoms can look very different depending on the mutations and person. CF is a progressive disease that causes Lucy's body to create a thick sticky mucus in her lungs and pancreas. Lucy does nebulized albuterol and chest therapy to prevent the mucus from sticking in her lungs. She takes pancreatic enzymes with all of her meals because mucus blocks the ducts of her pancreas. At this point in time CF has no cure, its symptoms can only be managed through medications and therapies. We are taking part in the Great Strides walk to help raise funds and awareness for Cystic Fibrosis. Lucy may have CF, but it certainly does not have her.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.