My precious baby niece, Ella, was born early on November 29, 2023 ❤.
Even though she had a tough start, from day one she has always been a happy, silly, resilient, and feisty little girl with the brightest smile! She captivates the attention of anyone who meets her and has a strong, tough, and engaging personality.
Ella had a long, 89 day stay in the NICU due to being a premie and her diagnosis of CF and resulting complications. By the time she was two months old, she had gone through two major surgeries and had NEC (Necrotizing enterocolitis) twice.
It has been inspiring to watch Matt and Michelle spend all of their time in the NICU to ensure Ella has the best care and always knew her family was there.
Ella came home from the NICU in late February and has been thriving at home, slowly but steadily gaining weight to get onto the infant growth chart. She is now 4 months and over 10 lbs, a huge milestone!
The CF diagnosis came as a surprise to all of us, as no one in either family has had CF to our knowledge. We've learned a lot about CF in a short time, and more info is below so you can learn, too.
Ella is doing great now and our family is beyond thankful for all of the advancements in CF care.
Still, there is a long ways to go! While new treatments will greatly improve Ella’s life, the CF Foundation is still working hard to find further treatments for CF patients and eventually, a cure. The CF Foundation needs support to do this and we sincerely appreciate your help meeting our fundraising goals ❤
If you feel more comfortable with Vemo, I will accept donations at @angelazmys and add them here.
Thank you!
About Cystic Fibrosis
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.