Hi everyone, it is time for Great Strides! This is an amazing way to make a difference for the CF community and directly improve someones daily quality of life, including my own!
I wanted to take this opportunity and talk about what is like for me on a daily, weekly, even monthly basis as an adult living with Cystic Fibrosis. Even in this pandemic that we have all been enduring and living through, where I have been quarenrined at home and extreamly careful, I still have symptons that I have to adress regardless. With minimal to no exposure, I have lung and nasal congestion that I tackle with airway clearance, exericse, nasal rinse, and an oscillating reverse airflow treatment to expand my lungs. It has felt overwheming to have to work so hard to stay healthy when I am at home. Today, there are currently 4 modulators available that treat Cystic Fibrosis at the celluar level. Unfortunatly I do not qualify for the most recent modulator, the triple combo Trikafta due to my rare genetic mutation. This drug is proving to be life saving and life changing for so many. There is still so much work to be done so this drug is available to every single person with Cystic Fibrosis, so our everyday lives can improve until there is a cure, because we will find a cure!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
Thank you so much!