Hi, my name is Lauren Shea-Warner and I’m the 2021 Ambassador for the Manchester Great Strides walk site.
A little over a year ago I started Trikafta and holy cow what a year it's been! Before starting this medication, I had been off and on steroids and antibiotics just to get through each winter season. Between October - April of each year I was struggling to breathe. I was tired all of the time and had to cancel plans which I hated doing. Based on my health decline I was in talks with my care team about the possibility of a lung transplant within the next few years. Yes, that was my reality.
However, on December 11, 2019 I was given another chance. Within weeks of taking this medication I was able to take deep breaths and was no longer coughing. All of my friends and family know that cough I'm talking about! I was able to sleep soundly, no longer waking up having coughing fits. Over the next few weeks I was able to gain weight, which was always a struggle for me and my energy greatly improved.
While Trikafta is definitely not a cure, I still take all of the same maintenance medications, breathing treatments to treat the pseudomonas,achromobactor and aspergillius in my lungs, and CF related diabetes shots. I am proud to say that I haven't needed any steroids, IV and oral antibiotic medications in over a year. I realize that I will continue to have good days and bad, but I am incredibly hopeful for the future.
I am so grateful for the CF foundation who helped fund this life changing medication for me and 90% of the CF population. Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind. We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line.
Because of covid, the CF walks are now virtual which means you can walk from wherever and whenever you want! My team, Team Lauren, is all registered and we are getting ready to walk in our neighborhood on May 15. And we are using the Fight CF app to help us! You can track your progress, send emails, and connect to Facebook, all right from your phone! It’s easy! If you don’t already have the app, you can find it in the app store.Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal in celebration of my 30th year of walking in great strides!