This year's 'Great Strides Walk to Cure Cystic Fibrosis (CF) is scheduled for Sunday, May 19th at the Madison Surf Club. Registration begins at 9:00 a.m.
With supporters like you, the Cystic Fibrosis Foundation has led the way in the fight against CF and fueled extraordinary medical and scientific progress. The CF Foundation has helped advance the development of more than a dozen new CF treatments, and added decades of life for those with CF. Thanks to this work, the life expectancy of someone born with CF has doubled in the last 30 years.
Our nephew, Brent, is a walking testament to these medical advances. Now almost 32, he exercises daily, maintains a healthy diet, and benefits enormously from the new medications that are now available. He is even a brand-new father!!
Just a few days ago, on April 29th, Forrest Thomas Hendricks was born. He was almost seven weeks early, so he only weighed four pounds and one ounce. He will remain in the hospital for several weeks, but Forrest is strong, breathing well, and we already know that he does not have CF, nor is he a carrier.
Thanks to you and to your faithful generosity, we have been able to reach this incredible milestone! When Brent was born, it was considered a miracle for boys with CF to reach their twentieth year; his sister, Tiffany, who also had CF, passed away at the age of 15. Through years of hard work, improved medications and lung treatments, and persistence despite many setbacks, Brent remains healthy and looks forward to being a parent to Forrest.
This is my thirtieth year of fundraising for this worthy cause. I am so very grateful that you have followed Brent's progress - and Tiffany's while she was alive - and that you have supported me so generously along the way. With your help, we are confident that one day, not one person will lose a loved one - child, sibling, parent, or friend - to cystic fibrosis. Let's keep making "great strides" until there is a cure!
To contribute here, please follow the prompts provided on the left side of this page.
To contribute by check, please make it payable to: CFF, and send it to me at 40 Overbrook Rd., Madison, CT 06443.
As always, from our family to yours, we thank you for your generous contributions, for your encouraging messages, and for your prayers.
Love,
Bev
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.