If you are new here, thanks for checking us out. If not, welcome back to our 6th year of fundraising!
Payton has had a very busy and successful year. She is loving 1st grade, reading everything she can and has become great friends with all the ladies in the office especially the school health aid Mrs. Juanita! She was a giraffe in the Lion King leading all the other animals, currently in gymnastics, indoorski lessons, and just finished a cheer camp where she performed her first half time show. She said this was a dream come true!
Payton does her vest twice a day for 24 minutes along with a nebulizer treatment on a nightly basis as a routine treatment. She has improved her numbers with her PFTs (pulmonary function tests) and is gaining weight and growing appropriately. She grew one inch in a three month period this past fall!
Because of all of you and your love and support, research has been able to make leaps and bounds towards a cure. There is a medication that is a “triple therapy” currently being tested in age groups of 6-11. The trial for ages 12 and over went so well that they were able to trial the younger ages. This is super exciting because this triple therapy would help Payton with her being heterozygous for her mutations. Our pulmonologist is hoping we can start the treatment next year some time! If that doesn’t bring tears to your eyes I’m not quite sure what would. When we first found out that Payton had Cystic Fibrosis she was 3 weeks old and the average life span at that time was 35. Now we’re talking about a possible cure in just 7 years!
I know there are more fundraising efforts out there and it can seem overwhelming at times. We just ask that you please take the time to read our story, keep Payton in your prayers, and if you by any chance have an extra $5 to donate we would love that as well. Thank you in advance for all of you and all the kindness you have shown Payton and our family. We wouldn’t be able to do this year after year if it weren’t for you all.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.