This is our son, Landyn. He is 3 years old and we found out when he was a little over a month old that he was diagnosed with Cystic Fibrosis.
When we found out, over the holidays, we were devistated. It's a genetic disease that affects 25% of parents (both carriers) that have kids. It's a mucus buildup around his lungs and pancreas making it harder for him to breathe and process foods.
He is doing treatments now and will continue to do them for the rest of his life. He is doing well with the treatments and is taking Enzymes to help process food along with using a vest to help loosen the mucus in his lungs.
We also have a daughter, Sierra, (8) that doesn't have CF. She loves Landyn so much and adores being a big sister! She loves making him laugh, smile, and is teaching him something new everyday!
This will be our fourth year doing the walk and we are excited for it every year! It is so inspirational to see everyone there and to feel like we're not alone. We'd love to see you there on May 9th! Come by and say hello.
Please help us by joining our team and fighting for this little boy along with others. Help with donations that go towards research to find a cure at the Cystic Fibrosis Foundation. We will also be selling team shirts in April where all the proceeds will also go to the CF Foundation. Free to sign up as a walker or virtual walker. You can walk, stay around the booths and cheer us on, or if you can't make it; you can still sign up. Help with donations. Share Landyn's story with family, friends, co-workers, neighbors, anyone from church, anyone you can think of.
It's a silent disease, but I know my son, Landyn is a fighter. I want him along with others to live as long as they can without CF. Help us find a cure please.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.