Welcome to our Struttin For Sutton 2020 Team Page!! We are excited you have considered donating to the Cystic Fibrosis foundation or joining our walk team! This is a cause so near and dear to our hearts, and it will be until CF stands for CURE FOUND!!
As most of you know, with Sutton's presence in this world, also came a diagnosis of Cystic Fibrosis for him and our family. Although we wouldn't change one second of what God has given us, it has been a challenging roller coaster we have been faced with since we figured out the "NEW NORMAL" CF would bring to our every day lives and the future for Sutton. We continue to KNOW God is good, and what he has given us is beyond what we deserve. These challenges have brought us strength, courage, determination, and HOPE that Sutton will see a day where CF doesn’t have a life expectancy attached to it. As the years have gone by, the purpose for CF being placed in our lives is showing itself more and more. Our work with the CFF is one of the most rewarding things we do. We have formed friendships that will last a lifetime, and we are seeing that the hard work we put in is WORKING.
Sutton is now 7 years old!! We can’t even believe how fast he is growing up! He is our soft hearted, kind, SMART, and driven Warrior, who teaches us just as much each day as we teach him. He is obsessed with rock climbing, skiing, building legos, and he can read a chapter book in a matter of a few hours. It is incredible to see how NOTHING holds this kid back when it comes to crushing ANYTHING he sets his mind to. His CF diagnosis has been increasingly more positive as the years have gone by. Sutton has been thriving OFF his VEST treatments and without enzymes for over 5 years now!! He no longer needs many of the medications he needed when we started this journey, which is a HUGE win in our books. He still takes daily inhalers and some medications to keep his allergies and sinuses healthy, but it is a regimen that leave us feeling blessed when we see what so many fighting this disease endure each day. Our prayer is that he will continue to show how strong he is! Even more encouraging is that the Cystic Fibrosis Foundation's research and funding has aided in the development of some new medications that are drastically reducing the symptoms of CF. THIS YEAR, the FDA approved a medication called Trikafta that treats the underlying cause of CF. It will benefit 90% of people living with this disease. THAT IS POSSIBLE BECAUSE OF FUNDRAISING!! Although it is not a cure YET, it is highly encouraging for us to know that there are some options for treatments should Sutton need them later on down the road. The years have brought PROOF that fundraising WORKS. These developments are a direct result of the funding provided only through donations made to the CFF by generous people just like YOU. Last year, Struttin For Sutton raised OVER $15,000 in Sutton's name to give to the foundation. That’s incredible, and evidence that there are so many kind hearted people behind us in our fight for a CURE. We would LOVE to CRUSH that number this year in the HOPES that the remaining 10% of those with CF find their miracle drug.
That's why we need continue to need YOUR help!!
There are approximately 30,000 Americans living with cystic fibrosis. 1000 new people are diagnosed each year with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We are so blessed that Sutton's CF is mild and that he has shown IMPROVEMENT over the last few years, but many others aren't that lucky. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. People lose their battles every day. There still is no cure for this devastating disease. By participating in the Great Strides Walks, we are helping add tomorrows to the lives of people living with Cystic Fibrosis. PLEASE JOIN US!! Support Sutton by making a donation to our Great Strides fundraising campaign today, AND even better yet...joining us in one of our walks! Be a part of our Struttin For Sutton Team and a part of the campaign to not give up on these warriors UNTIL IT’S DONE!!
Help us reach our fundraising goal. Your gift goes to life-saving research and medical progress and is 100-percent tax deductible. Every little bit is SO greatly appreciated and so are your prayers...prayers that Sutton continues to be the happy, healthy, smart boy that he is, and that VERY soon (as a result of your generous help), CF will stand for CURE FOUND for all of the people in this world fighting this disease!
We thank you from the bottom of our hearts! Jeremy, Nicole, Sutton, & Fischer Spooner
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.