We can not thank you enough for joining our team, #TeamTruck. By you deciding to join our team, we are adding more tomorrow's to all those living with Cystic Fibrosis. You are helping raise awareness for Truck-- giving us hope--prayers--- and strength to believe and know that Truck will get to experience all that life has to offer to him. That he will be able to live his life to it's fullest potential that God has blessed him with.
Thank you- Brett, LeighAnn, Emmery and Truck Mertens
Mo-Town Event Details:
When: May 28, 2022 Time: 9:00am
Where: Cerise Park
Why: #CFAwareness
Everywhere Details:
Get out and walk-- help us spread awareness!
Our story starts back on April 27, 2016 when the most precious little boy was born.
May 17, 2016 at Taco Tuesday, our pediatrician called.... first me... {I didn't answer}... then Brett.... he answered. It wasn't a quick phone call you generally get from the doctor's office... about an upcoming appointment... It was the call that changed our lives forever... and in all honesty for the most scary, beautiful, ah-mazing way. Trenton, who goes completely by Truck, had his newborn screening come back abnormal for the possibility of Cystic Fibrosis (CF), when in all reality our pediatrician knew Truck had CF-- his test had come back that he carried two genes of f508-- Truck had CF {deltaf508}...There are approximately 30,000 Americans living with cystic fibrosis.
This news came possibly at the craziest time in our lives. We were just getting ready to move from California to Colorado... with a now a 6 week old son who had been diagnosed with CF.. & a 2 1/2 year old.
Life now? It's beautifully messy-- by that I mean I have two little ones getting into everything, but Truck has been doing fantastic and while there is no cure {yet} CF is manageable and with modern medicine we are blessed to have the hope that Truck will live a long fulfilling life. We by no means would have chosen this path for Truck, but are at peace trusting in the Lord's plan-- knowing He created Truck exactly the way He had planned and we are more than blessed to be his parents.
This year & every year from here until we're unable to, we as a family will be participating in Great-Strides a fun, family event that raises awareness and support for people with CF and their families. We hope that you will choose to support us in any way that you can.
We are excited to be raising awareness for Cystic Fibrosis and money to help support research in hopes to one day find a cure-- or even better yet -- continue to develop new drugs to prolong lives of those living with CF. Your gift is 100-percent tax deductible.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.