I am raising money for the Cystic Fibrosis Foundation! I was diagnosed with CF (also called 65 roses) at birth and later CF related diabetes. I want to raise awareness to show everyone that it doesn't matter what life deals you, you can overcome it.
In my life, I have had gastro-intestinal surgery, 6 six sinus surgeries, and multiple hospitializations from bowel obstructions. I complete two lung treatments a day and take multiple medications. While attending college, I spent a total of 14 days in the hospital and attended class with portable IVs for a week. It didn't stop me!
In high school I participated in Business Professionals of America where I served as the State Public Relations Director, State President, and was a National Officer Candidate. I attended the University of Denver in Denver, CO and received a Bachelors in Accounting with a minor in Economics and a Masters of Accountancy in 4.5 years. I am proud to say that I am a CPA! I had the privilege and opportunity to study abroad in Belfast, Northern Ireland. CF has never been a defining measure in my life, it's just a part of me many people forget about.
Orkambi and TriKafta changed my life!! I was on a routine of in-office sinus clean outs every six weeks and sinus surgeries every 2 years. Since starting Trikafta, my sinuses are clear and I now see the doctor once a year. I rarely have stomach problems, and I haven't been hospitalized since Nov. 2019. My lung function is currently exceeding 100% of expectations. This would not happen w/o the research and community the CFF foundation has created.
Help me give back and make life for everyone w/ CF even better.
Message from the CFF Foundation below:
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.