Welcome back to the annual CF Great Strides Lemonaide Team Page.
For those of you just joining our journey, Ella was officially diagnosed with Cystic Fibrosis at 4 months old. It took us quite a while to figure out "how to feel", "how to react", "what this diagnosis means", and how we can support Ella through this. She is such a STRONG and HAPPY girl, and brings light to all she meets. We have gone through amazing highs watching her grow over the last 3 years and have also experienced extreme lows, digesting this news, but have been forever grateful and thankful to those around us... supporting us. Near and far! We thank you for your love. It has been hard for us to verbalize our needs and support, but we are very hopeful for the future and the current medication that Ella takes has made a huge positive impact on her health. She is THRIVING. From being in the negative percentages on the growth chart as an infant, she is growing stronger and bigger and louder (LOL) every day! She is AMAZING, and we thank you all for your ongoing support.
We often feel like there is nothing we can do when it comes to her diagnosis, and those feelings of helplessness are tough to manage. However, maintaining a positive attitude and happy environment is extremely important, so we do what we need to do to make sure Ella is LOVED at all times. Which is so easy to do. Ella is a true gift, a joy to be around, and its our job to ensure that we advocate for her. And her big brother Landon LOVES her too!! Bonus! So, in order to put a positive spin as to how we can support baby girl, we are joining the CF Foundation and walking at the Great Strides event on May 14th in order to raise funds for research and hopefully a cure to Cystic Fibrosis!!! Hoping that you can join us - either in person at Sloan's Lake in Denver or virtually on your treadmill, walking around the park, or on a hike!!! Team Lemonaide, here we go again!! THANK YOU!!!!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
I walk for them. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.
Please support me!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.