If you are new here, thanks for checking us out. If not, welcome back to our 8th year of fundraising!
This past year was extra special because Payton was able to start Trikafta, a medication that reverses the effects of her mutations, and live in Hawaii for 8 months! She was able to start it a week before her 8th birthday. Happy Birthday Princess Warrior!
We quickly found out that Payton is one with the ocean and could be mistaken as a mermaid. The salt water was the perfect therapy for her lungs so we took full advantage of swimming with dolphins, monk seal, manta rays, turtles, sharks, and all the gorgeous fish. On land you will find Payton tapping, free form dancing, and singing to the top of her lungs. This is truly what makes this girl happy!
Payton does her vest twice a day for 24 minutes along with a nebulizer treatment as her normal routine. She has improved her numbers with her PFTs (pulmonary function tests) and is gaining weight and growing appropriately. Her last PFT was 124%! Our goal is always to be above 80%.
I know there are several fundraising efforts out there and it can seem overwhelming at times, especially now with everything we all have endured the past year. We just ask that you please take the time to read our story, keep Payton in your prayers, and if you by any chance have an extra $5 to donate we would love that as well. Thank you in advance for all of you and all the kindness you have shown Payton and our family. We wouldn’t be able to do this year after year if it weren’t for you all.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.