Luna is an energetic four-year-old who has the sweetest personality and smile. She loves baking, dancing, singing, and reading books. She is so smart! She loves to learn and has the best memory. Peppa Pig, Minnie Mouse, and Blippi are just some of her favorite friends. She loves spending time with her friends & family.
Luna was diagnosed with Cystic Fibrosis nine days after she was born, after receiving her newborn screen results. We had no idea what CF was and what was to come of her future. Luna started taking medication immediately to help her improve the absorption of vital nutrients and started chest physiotherapy to break up mucus in her lungs. Along with those treatments, she now takes an CFTR modulator (medicine that targets the underlying defect in CFTR protein) and an inhaled medicine to thin the mucus. Today, this is her "normal." Although she takes every new challenge in stride, we wish this wasn't her normal. While we're so grateful for her good health today, we still need to find a cure for CF. That's where we need your help! The CF Foundation relies on private donations to keep research and clinical trials flowing. It also offers community support which is needed between CF families. Because of your donations, Luna is able to play like a four-year-old should and live her life to the fullest!!
Click the "DONATE" button below. From there, you can make a donation. By making a donation, you are joining a growing group of people committed to finding a cure for Cystic Fibrosis. Donate to our team and help add tomorrows! There are approximately 30,000 Americans living with CF. We will not rest until all those with CF have a cure. The time is now. Together, we can conquer this disease.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.