Katie Else

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

As most of you know Maverick was diagnosed at 7 months old after it being missed on his newborn screening. We had a rough few months, but he has been doing amazing since taking pancreatic enzymes. We are looking at starting Trikafta once it is approved(hopefully sooner than later) and are being told this will drastically help Maverick throughout his future. We would love for you to join us on this walk or spread the word by sharing this post!