Sharon Higuchi

Arlo has been Living with cystic fibrosis-since he was born. It can be challenging for both the baby and their family. Cystic fibrosis (CF) is a genetic condition that affects the lungs, digestive system, and other organs. It is caused by mutations in the CFTR gene, which results in the production of thick, sticky mucus that clogs the airways and traps bacteria, leading to lung infections and damage.

Infants with CF are usually diagnosed shortly after birth through newborn screening. Treatment for CF typically involves a combination of therapies aimed at managing symptoms, preventing complications, and improving quality of life.

For small children with CF, the most important aspect of treatment is to maintain good nutrition and prevent malnutrition. This may involve a special high-calorie, high-fat diet and enzyme supplements to help the body digest food properly. Infants with CF may also need respiratory treatments such as chest physiotherapy and inhaled medications to help keep their airways clear.

Additionally, regular checkups with a healthcare provider who specializes in CF are essential to monitor the baby's growth and development, detect and treat complications early, and adjust treatment as needed.

It's important to note that CF is a chronic condition that requires ongoing management, and it can be emotionally and financially stressful for families. However, with proper treatment and care, many infants with CF can lead happy, healthy lives.

 

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!