Our son Max was born 35 years ago this spring. Within weeks of his birth, it was clear he was in trouble - losing weight, anemic, and crying day and night from severe gastrointestinal distress. That Colorado had implemented the newborn screening test for CF saved Max's life, for without that timely test who knows how much wasted time would have passed before he was diagnosed. As it was, his diagnosis led to immediate hospitalization, where he (and I, sleeping in a chair in his room) spent weeks while the doctors worked to get him stabilized.
We were lucky that we actually knew what cystic fibrosis was, because we knew two familes with children slightly older than Max who had CF. Unfortunately, we also knew that very few children born in the early and mid-eighties lived to adulthood.
Luck was with us again when the research and treatment options for children with CF exploded following the discovery of the CF gene three years after Max was born. I look back in awe and amazement at what science and medicine has accomplished. I have profound gratitude that so many have supported with their dollars the effort to understand, manage, and hopefully finally cure this disease. And what a miracle it is that our "little Max" is now a happy father himself!
We are at a pivotal moment in the history of cystic fibrosis and your support matters now more than ever. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
Thank you from the bottom of my heart.