The first indication that Vivian might have Cystic Fibrosis came on an ultrasound done at 36 weeks when they found a bowel obstruction and determined that she would need surgery after she was born. Research indicated that one of the potential causes for the obstruction was meconium ileus which is caused by thicker meconium and found primarily in infants with Cystic Fibrosis.
True to the findings of that ultrasound, Vivian was taken into surgery about 9 hours after she was born where her surgeon removed 47 centimeters (approximately 17 inches) of her ileum. Vivian came out of surgery with an ileostomy in place to allow the upper portion of her bowel to heal before it could be connected to the bottom half. Six weeks later, she headed in for her second surgery to reconnect her small intestines.Vivian spent 9 long weeks living at Children’s hospital in Minneapolis, watched over by a great team of doctors and nurses while she recovered from two surgeries.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!