As many of you know my great-nephew Gabe is one of 30,000 Americans living with cystic fibrosis. What this means is that in a single day, Gabe takes over 20 pills, does 40 minutes of vest [breathing] treatments, does 2 sinus rinses, and has 3 nebulizer treatments.
Within the last year, the FDA approved a groundbreaking drug that will benefit approximately 90% of CF patients. People who have started this drug (called Trikafta) have reported being able to clear decades of mucus from their lungs in the first few days (an unpleasant phase they are referring to as "the purge") and they foresee fewer lung infections, fewer doctor visits, and overall better quality of life. The CF Foundation was instrumental in the development of this drug. The funds raised for the Great Strides walk are making a real difference.
Unfortunately Gabe is part of the other 10% of CFers. The CF Foundation, however, is committed to leave no one behind. Their motto is "until it's done," and we need funds to get there.
Although we are unable to walk this year, please consider making a donation to my Great Strides fundraising campaign.