New to our page is a video we created a few years ago. Â Please watch and listen to what the boys have to say! Josh is now 20, Matthew 18 and Preston is 9.
Our family learned about Cystic Fibrosis in 2009 when our third son was born. Â We received a call the night after Christmas, telling us that his new born screening had come back with some news.Â He was diagnosed with Cystic Fibrosis and theyÂ had put a referral into Childrenâ€™s Hospital. Our older two sons were diagnosed a month later with CF as well. Â The last 9 years have been a whirl wind of new treatments, pills, machines and appointments and challenges. Â The Doctorâ€™s and nurse at Childrenâ€™s have been amazing and the boys are doing good.Â For most people, they see the boys and donâ€™t know they have this disease, because it is on the inside. So many say â€œbut they look so healthy to meâ€, however to know how it affects their daily life you would have to live it with them.Â They battle CF everyday by taking 60 pills, two vest treatments with nebulizers/medications, inhaler, increased food intake, physical activities and multiple visits to the various clinics/hospital.Â Each of them struggle with different issues that CF can entail, amazingly this disease affects everyone different even though they have the same â€œgeno typeâ€ and are brothers. Â
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support our boys and many others who battle this every day!
HelpÂ us reachÂ our fundraising goal by donating toÂ our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.