This is Landyn and he is 5 years old now. When he was a little over a month old, he was diagnosed with Cystic Fibrosis.
It's a genetic disease that affects 25% of parents (both carriers) that have kids. It's a mucus buildup around his lungs and pancreas making it harder for him to breathe and process foods.
He is doing treatments now and will continue to do them for the rest of his life. He is doing well with the treatments and takes Enzymes to help process food along with using a vest to help loosen the mucus in his lungs. Luckily, his lungs have been clear and he hasn't been dealing with any breathing problems.
Landyn has a big sister, Sierra, (10 ) that doesn't have CF. She loves Landyn so much and adores being a big sister! She loves making him laugh, smile, and is teaching him something new everyday!
This will be the fifth year doing the walk and we all look forward to it every year! It is so inspirational to see everyone there and to know we're not alone. We'd love to see you there on May 14h! Come by and say hello.
Please help us by joining our team and fighting for this little boy along with others. Help with donations that go towards research to find a cure at the Cystic Fibrosis Foundation. We will also be selling team shirts in April where all the proceeds will also go to the CF Foundation. Free to sign up as a walker or virtual walker. You can walk, stay around the booths and cheer us on, or if you can't make it; you can still sign up. Help with donations. Share Landyn's story with family, friends, co-workers, neighbors, anyone from church, anyone you can think of.
It's a silent disease, but we know, Landyn is a fighter. We want him along with others to live as long as they can without CF. Help us find a cure please.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.