This is Landyn and he is 4 years old now. When he was a little over a month old, he was diagnosed with Cystic Fibrosis.
It's a genetic disease that affects 25% of parents (both carriers) that have kids. It's a mucus buildup around his lungs and pancreas making it harder for him to breathe and process foods.
He is doing treatments now and will continue to do them for the rest of his life. He is doing well with the treatments and takes Enzymes to help process food along with using a vest to help loosen the mucus in his lungs. Luckily, his lungs have been clear and he hasn't been dealing with any breathing problems.
Landyn has a big sister, Sierra, (almost 10 ) that doesn't have CF. She loves Landyn so much and adores being a big sister! She loves making him laugh, smile, and is teaching him something new everyday!
This will be the fifth year doing the walk and we all look forward to it every year! It is so inspirational to see everyone there and to know we're not alone. We'd love to see you there on May 15th! Come by and say hello.
Please help us by joining our team and fighting for this little boy along with others. Help with donations that go towards research to find a cure at the Cystic Fibrosis Foundation. We will also be selling team shirts in April where all the proceeds will also go to the CF Foundation. Free to sign up as a walker or virtual walker. You can walk, stay around the booths and cheer us on, or if you can't make it; you can still sign up. Help with donations. Share Landyn's story with family, friends, co-workers, neighbors, anyone from church, anyone you can think of.
It's a silent disease, but we know, Landyn is a fighter. We want him along with others to live as long as they can without CF. Help us find a cure please.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.