Our Great Strides Story
Dearest family and friends,
It’s been five years since our sweetest Ella Leigh was diagnosed with cystic fibrosis.
Since then she’s done hundreds of nebulizers, taken thousands of creon tablets, and undergone multiple hospitalizations and daily treatments. However, this does not keep our warrior-fighter girl down. With a fierce passion and determination for living the best life, Ella continues to enjoy every day to the fullest, creating moments filled with excitement and adventure. She keeps us on our toes, literally, and is up for anything new. Singing, dancing, making us all laugh. Ella (5) and her brother Landon (7) fill our lives with joy to the max.
It is thanks to our village, our Lemonaide Village, who supports us with our fight for raising awareness and researching a cure for cystic fibrosis. For example, the life changing treatment Trikafta that the FDA approved for Ella's age-group last year. Amazing research and results from hard work and support.
Thank you to our friends and family, who have been with us on this journey, challenging, but so rewarding to see how Ella has grown and thrived since her diagnosis in 2019. We couldn’t do life without you and we are so grateful for the support that you give us.
Please join us for another year of support and fundraising for the CF foundation. Whether it is just your presence or financially, we are so thankful and grateful and we love doing life with you.
There are multiple events this year, and we ask that you join us, at any or all, like the Great strides walk (May), CF climb (July), Vail bike ride (Sept.) or end of year Gala (Nov). We can’t thank you enough and look forward to seeing you in person or virtually at our events.
Please free to send this link to other friends, family or supporters. Every dollar counts, and with your help we can make CF stand for Cure Found!!!!
Much love ❤ from your Lemonaide Village, and Ella’s biggest fans!!! ❤❤
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We walk for a cure for all people with cystic fibrosis. By joining our team, you can help us end this disease!
To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.
Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.